Crisis Resources
Mental Health Support: Endometriosis impacts patients both physically and mentally, often creating medical trauma and a state of crisis for patients. This can lead to PTSD, anxiety, depression and suicidal thoughts. If you or a loved one is in immediate crisis and are in the United States, dial 911 or go to your nearest emergency room. The following links are important mental health resources for those in crisis and in need of more support. The Trevor Project Suicide Prevention Hotline Therapy for Black Girls The National Queer and Trans Therapists of Color Network Postpartum Support International The International Association for Premenstrual Disorders National Eating Disorders Association Rape, Abuse & Incest National Network
Support Groups for Endometriosis
Casey hosts a free, virtual education and support group once a month for endometriosis patients. The group is every 3rd Saturday of the month from 10am-11am est through zoom and is open and welcoming to all patients with endometriosis, including nonbinary and trans patients. The zoom link to join the group is here: https://us06web.zoom.us/j/84989307699
Mental health provider Bre Crisp runs an endometriosis support group and offers counseling in North Carolina and South Carolina.
The Endometriosis Coalition is a nonprofit that runs a monthly support group.
Latinas Con Endo runs a monthly virtual Chism-Endo group.
EndoCenter of Chicagoland runs a free virtual support meeting.
Endo Sister Nashville Facebook Group has a Monthly Meetup.
The Lasa App runs another free support group.
Endometriosis Support and Education: Free Endometriosis Education Course by certified patient advocate Kate Boyce, BCPA and Rosemarie Philip EndoBlack: Specifically for the African American Community and other women of color. GynoQueer and Endo Knows No Gendo: Specifically for LGBTQIA+ individuals Nancy’s Nook Endometropolis EndoWarriors
National Endometriosis Resources Websites The Endometriosis Summit ExtraPelvic Not Rare Project Endo EndoBlack The Endometriosis Coalition The Center for Endometriosis Care The Endometriosis Research Center
Podcasts Endo Battery Podcast The Vocal Pelvic Floor Podcast In Sixteen Years of Endometriosis
Documentaries EndoWhat Documentary by Shannon Cohn Below the Belt Documentary by Shannon Cohn EndoTruths: Infertility and Mental Health Documentary By Casey Berna
Books Navigating Health Endometriosis: Understand your symptoms, get the right treatment, reclaim your life. by Jen Moore Beating Endo: How to Reclaim Your Life from Endometriosis by Dr. Iris Orbuch and Dr. Amy Stein Know Your Endo: An Empowering Guide to Health and Hope with Endometriosis by Jessica Murnane
Patient Led Books on Advocacy and Social Justice Bleed: Destroying Myths and Misogyny in Endometriosis Care by Tracey Lindeman Women’s Health and Corporate Marketing: Our Bodies, Their Business: Under The Influence, Pharmaceutical relationships and their impact on endometriosis care, by Heather Guidone. 28 Ways on How to Advocate for Your Healthcare by Shantana May Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick By Maya Dusenbery My FemTruth: Scandalous Survival Stories Good Girl, Bad Period: Breaking the Silence on Misogyny and Gaslighting through the Lens of Endometriosis
Reflective Books by Patient Advocates Part of You, Not All of You: Shared Wisdom and Guided Journaling for Life With Chronic Illness by Jenneh Rishe Finding Peace with a Devastating Disease: Reflections on Endometriosis by Amy Corfeli These Stones Remain: 60 Reflections on Finding Hope When Darkness Lingers by Claudia Campbell
*For local multidisciplinary care resources and support, feel free to contact Casey at caseyberna@gmail.com or sign up for one of the free monthly support groups.
Support Groups for Infertility and Pregnancy Loss Windy Ezzell, LCMHC, a long time mental health provider in the fertility and pregnancy loss communities also is running two groups at Inner Solutions Counseling offices at 2450 Delaney Ave Wilmington, NC 28403. Contact Windy at windy@innersolutionscounseling.com for more information.
For national infertility resources and information, virtual and local support groups, and advocacy initiatives the following organizations have extensive information and support: RESOLVE New England RESOLVE
For national pregnancy loss resources and information, virtual and local support groups, advocacy initiatives, and patient education, the following websites have extensive information and support: Sisters in Loss Black Moms in Loss Support Group Recurrent Pregnancy Loss Association Reproductive Immunology Center